New RWJF-funded research identifies the challenges vulnerable individuals face when accessing health information and offers insight into how the marketplace could better meet their health information needs.
NEW YORK AND ANN ARBOR — A major, multi-disciplinary study from Oliver Wyman and Altarum, developed with support from the Robert Wood Johnson Foundation, found that most vulnerable healthcare consumers struggle to understand their options, their costs, and even the language around their care. The research also explored marketplace perceptions of these consumers’ health information needs and discovered a gap between stakeholder impressions and consumers’ reality.
“These findings tell us that many consumers, especially the most vulnerable, face significant barriers in finding the information they want and need,” said Andrea Ducas, program officer at the Robert Wood Johnson Foundation. “We must address serious gaps in access to information in order to build an inclusive health care system for all.”
The study findings, released today in conjunction with an Oliver Wyman-hosted panel discussion on this topic at the 2017 World Economic Forum, are the culmination of the “Right Place, Right Time” initiative – which aims to shed light on how consumers access health information and how the marketplace can better meet their needs.
About this study:
This research focused on the needs of lower-income consumers, Medicaid beneficiaries, the uninsured, caregivers, and Spanish speakers. For the consumer component, Altarum conducted interviews with 65 consumers and a nationally representative mail and web survey of more than 4000 respondents.
For the marketplace component, Oliver Wyman conducted interviews with approximately 100 executives from across the health landscape to assess the current state of health information provision. Follow-up interviews gauged stakeholders’ reactions to the consumer findings. “Today’s healthcare organizations need a multi-pronged strategy to ensure they are providing all consumers with the right information, in the right place, at the right time,” said Helen Leis, Oliver Wyman partner and study lead. “These reports provide a robust set of data to help guide those decisions.”
Key findings and stakeholder reactions include:
Vulnerable consumers want more, better cost information:
- About 50 percent of respondents are not satisfied with healthcare cost information.
- The uninsured are the least satisfied, with 70 percent of uninsured respondents not satisfied.
Spanish speakers are reluctant to ask for resources in their language:
- Almost half of Spanish-speaking respondents say that language issues present a barrier when communicating with doctors.
- When resources are not offered outright, some Spanish speakers worry about prejudice and may seek a different care provider.
- While most health organizations have Spanish-language resources, they did not have protocol for proactively offering them.
Many low-income patients in poorer health feel disrespected by providers and are less likely to trust healthcare information or follow medical advice:
- Nearly 40 percent of low-income consumers in poorer health felt disrespected.
- Patients feeling disrespected are three times more likely to believe doctors are inaccurate and two times more likely to not take their medications as directed, compared with patients who feel respected.
- The high correlation between patients who feel disrespected and non-adherence prompted marketplace leaders to identify opportunities to ensure consumers are treated with respect.
Patients seek clues to provider warmth through online patient reviews and provider photos:
- While only 42 percent of survey respondents had used patient reviews, of those that did, 83 percent say reviews influenced their choice of doctor.
- Respondents said respect and sensitivity are among the most important qualities in a physician, and they look for that in provider photos.
- Marketplace reaction included setting goal to be more intentional about the provider photos and more proactively manage patient reviews.
Caregivers are information “superusers”:
- Caregivers for children are nearly three times as likely to use a health app as non-caregivers (70 percent vs 25 percent).
- Health plans and providers acknowledged the need to involve caregivers even more during information dissemination as well as care delivery.
“We have placed an increasing burden on consumers to make smart decisions about their healthcare or risk their own wellbeing. Despite this, we have not always equipped consumers with the information they need to manage their health affordably,” said Dr. Chris Duke, research director of the consumer study and director of Altarum’s Center for Consumer Choice in Health Care.
Altarum (www.altarum.org) integrates objective research and client-centered consulting skills to deliver comprehensive, systems-based solutions that improve health and health care. Altarum employs over 450 individuals and is headquartered in Ann Arbor, Mich., with additional offices in Portland, Maine and the Washington, D.C., area. For more information, visit www.altarum.org or on Twitter @Altarum.
About Oliver Wyman and its Health & Life Sciences Practice
Oliver Wyman’s Health & Life Sciences practice serves clients in the pharmaceutical, biotechnology, medical devices, provider, and payer sectors with strategic, operational, and organizational advice. Deep healthcare knowledge and capabilities allow the practice to deliver fact-based solutions. For the latest on the business of transforming healthcare, visit health.oliverwyman.com.
About the Robert Wood Johnson Foundation
For more than 40 years the Robert Wood Johnson Foundation has worked to improve health and health care. We are working with others to build a national Culture of Health enabling everyone in America to live longer, healthier lives. For more information, visit www.rwjf.org. Follow the Foundation on Twitter at www.rwjf.org/twitter or on Facebook at www.rwjf.org/facebook.